Wisdom Shared with Carole Blueweiss
Meet the experts on the frontlines: individuals with first-hand experiences facing a range of challenges. Their personal stories not only provide unique insights but also open up new possibilities for how we navigate our own lives.
S4 E2 · Sun, March 30, 2025
Blessed With Support
Episode Summary In this episode, Michele Uriarte-Beards shares her journey as the mother of actor and voiceover artist Miguel Gabriel. When Miguel showed early signs of speech and movement challenges, Michele navigated the uncertainties of finding the right support. Facing resistance—even from within her own family—she remained determined to help her son thrive. In addition to exploring various therapies, she found unexpected help in the theatre community, which not only provided Miguel with a creative outlet but also set him on a path to a professional acting career. Michele also reflects on Miguel’s experience with bullying—how those who once bullied him ultimately became his bodyguards. It’s a powerful parallel to his journey from struggling with speech to becoming a successful voiceover actor. From This Episode Watch Camera: https://linktr.ee/camerathemovie Related episode of Wisdom Shared: Finding Voice Through a Camera with filmmaker Jay Silverman Miguel's Instagram: @officialmiguelgabriel Miguel's IMDB page Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to YouTube channel Follow and send a message on Facebook Follow and send a message on LinkedIn Follow on Instagram Follow on TikTok Follow on Threads The Wisdom Shared Team Audio Engineering by Steve Heatherington of Good Podcasting Works Co-Producer and Marketing Coordinator: Kayla Nelson Production Assistant: Becki Leigh
Bonus · Sun, February 16, 2025
A Heart-Stopping Moment: Faith, CPR, and Miracles (Replay)
Episode Summary This is a replay of a recent episode because February is American Heart Month. Craig and Karey Packard share their inspiring story about facing an unexpected health crisis that forever changed their lives. They recount how the life-saving power of CPR played a critical role in a miraculous outcome. Their story is one of faith and resilience and a good reminder of the power of preparation in the event of the unexpected. About Craig & Karey Packard Craig and Karey Packard live in Londonderry, NH. They have been married for 36 years and have 4 children and 2 grandchildren. Craig did his undergraduate work at Tufts University, completed medical school at the Uniformed Services University of the Health Sciences, and later added a Masters in Public Health from Harvard. He served as a doctor in the US Air Force for 26 years before retiring from the military in 2011 after which he worked in the Occupational Medicine field for an additional 10 years before fully retiring. He was board-certified in Family Medicine, Aerospace Medicine, and Occupational Medicine. Karey graduated from Clarion State College with a degree in accounting after which she received an Associates degree in paralegal studies at George Washington University. She had to leave the workforce when their oldest son was diagnosed with leukemia and with the frequent military moves, she never returned to the paid workforce. Among her numerous volunteer roles, she has worked for the American Heart Association as an advocate for CPR training and heart health for the past decade. From This Episode What is Cardiomyopathy? “Miracle Girl” Recovers from “Non-Survivable” Event Find CPR Training near you American Heart Month Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to YouTube channel Follow and send a message on Facebook Follow and send a message on LinkedIn Follow on Instagram Follow on <a href="https://www.tiktok.com/@wisdom_shar
Bonus · Mon, January 27, 2025
The Dye-lemma: Autism, Behavior, and Food (Replay)
In light of the news that the FDA is banning Red No. 3 due to health concerns, we're replaying this popular episode from last season that discusses the impact of food dyes on behavior. Join us in a touching conversation with Amy and her daughter Lizzie as they share their experiences with 18-year-old Mathew, who was diagnosed with autism. Amy discusses the challenges of raising Mathew, including how eliminating certain food dyes helped reduce his aggressive behavior. Lizzie shares insights on being an older sister to a sibling with autism, highlighting the unique bond they share. This episode offers a candid look into a family's journey with autism, filled with challenges, love, and resilience. For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/NLxFbGl-0vY Resources Dye-Free Kids Facebook Group Hidden Talents ABA Marcus.org Food Color and Autism: A Meta-Analysis Autism Spectrum Disorder: What Every Parent Needs to Know book The Impact of Artificial Food Dyes on Autism & ADHD Contact Amy: atgnichols@gmail.com Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to YouTube channel Follow and send a message on Facebook Follow and send a message on LinkedIn Follow on Instagram Follow on TikTok Follow on Threads The Wisdom Shared Team Audio Engineering by Steve Heatherington of Good Podcasting Works Co-Producer and Marketing Coordinator: Kayla Nelson Production Assistant: Becki Leigh
S4 E1 · Sun, January 12, 2025
The Power of We: It Takes a Village
Episode Summary Days for Girls is an organization empowering communities worldwide through menstrual health education and resources. Today, I’m thrilled to welcome the founder of Days for Girls, Celeste Mergens, along with her husband, Don. This episode dives deeper than just menstrual equity and the work of DfG. We discuss Celeste’s memoir, The Power of Days , which chronicles her inspiring journey—from growing up in poverty and overcoming abuse to leading a global movement. They also open up about Celeste's rare hereditary movement disorder that affects her and four of her grandchildren. About Celeste Mergens Celeste Mergens is an author, thought leader, and changemaker and has been featured in Oprah’s O Magazine , Forbes , and Stanford Social Innovation Review . She is the Founder of Days for Girls , a global award-winning organization championing Women's Health and Menstrual Health Equity. Days for Girls was named by the Huffington Post as a ‘Next Ten’ Organization poised to change the world in the next decade and has reached more than 3 million women and girls in 145 countries. Typically averaging dozens of speaking events a year, Celeste is a sought-after professional speaker and consultant. She was awarded the AARP Purpose Prize, Conscious Company Global Impact Entrepreneur Top Ten Women, 2019 Global Washington Global Hero, and Women's Economic Forum's Woman of the Decade. CelesteMergens.com Celeste's Book The Power of Days From This Episode https://www.daysforgirls.org/ The DfG Pad and Kit NYC Chapter of Days For Girls - Sign up for Monthly Volunteer Sessions NYC Chapter of Days For Girls Instagram Donate to the NYC Chapter of Days For Girls <a href
S3 E14 · Sat, December 21, 2024
A Heart-Stopping Moment: Faith, CPR, and Miracles
Episode Summary Craig and Karey Packard share their inspiring story about facing an unexpected health crisis that forever changed their lives. They recount how the life-saving power of CPR played a critical role in a miraculous outcome. Their story is one of faith and resilience and a good reminder of the power of preparation in the event of the unexpected. About Craig & Karey Packard Craig and Karey Packard live in Londonderry, NH. They have been married for 36 years and have 4 children and 2 grandchildren. Craig did his undergraduate work at Tufts University, completed medical school at the Uniformed Services University of the Health Sciences, and later added a Masters in Public Health from Harvard. He served as a doctor in the US Air Force for 26 years before retiring from the military in 2011 after which he worked in the Occupational Medicine field for an additional 10 years before fully retiring. He was board-certified in Family Medicine, Aerospace Medicine, and Occupational Medicine. Karey graduated from Clarion State College with a degree in accounting after which she received an Associates degree in paralegal studies at George Washington University. She had to leave the workforce when their oldest son was diagnosed with leukemia and with the frequent military moves, she never returned to the paid workforce. Among her numerous volunteer roles, she has worked for the American Heart Association as an advocate for CPR training and heart health for the past decade. From This Episode What is Cardiomyopathy? “Miracle Girl” Recovers from “Non-Survivable” Event Find CPR Training near you Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to YouTube channel Follow and send a message on Facebook Follow and send a message on LinkedIn Follow on Instagram Follow on TikTok Follow on Threads The Wisdom Shared Team Audio Engineering by Steve Heatherington of Good Podcasting
Bonus · Sun, December 15, 2024
Beyond the Socks: Understanding Balance, Fall Prevention and Aging with Awareness with Dr. Carole Blueweiss
Episode Summary In this bonus episode, you will hear Erica DeMarch interview me on her Balance Matters podcast. We not only discuss my TEDx talk Your Socks May Hold the Key to Aging Better. We also dive deep into the themes of the talk—exploring what else I would have shared if given more than 10 minutes to speak. In addition, we discuss the importance of body awareness in balance training along with exploring methods that can help with awareness through movement, like the Feldenkrais Method and yoga - powerful tools for improving balance and preventing falls. About Erica and Balance Matters Erica DeMarch, founder of Step and Connect and inventor of Balance Matters, interviews leaders in medicine, health, and wellness to give you up-to-date information re: balance tips, resources, and exercises to implement in your practice. Erica's website: www.stepandconnect.com The Balance Matters podcast: https://balancematters.buzzsprout.com/ From This Episode My TEDx talk https://feldenkrais.com/ https://feldenkraisproject.com/ https://www.anatbanielmethod.com/ Effects of the Feldenkrais Method as a Physiotherapy Tool: A Systematic Review and Meta-Analysis of Randomized Controlled Trials - PubMed nlm.nih.go The Empowering Effect of Embodied Awareness Practice on Body Structural Map and Sensorimotor Activity: The Case of Feldenkrais Method - PubMed nlm.nih.gov Effects of Feldenkrais exercises on balance, mobility, balance confidence, and gait performance in community-dwelling adults age 65 and older - PubMed nlm.nih.gov Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to YouTube channel Follow and send a message on Facebook Follow and send a message on <a href="https://www.linkedin.com/i
S3 E13 · Mon, October 07, 2024
Truth Teller: Sheila Nevins and Tourette Syndrome
Episode Summary Sheila Nevins, a prominent documentary filmmaker and best-selling author, discusses her experiences with her son's Tourette syndrome and speaks about the broader themes of aging, disability, and authenticity. Through personal stories and reflections, she sheds light on often misunderstood topics, emphasizing the importance of genuine representation over sensationalism. With humor and candor, Sheila shares her journey of seeking answers and navigating the complexities of life. Her commitment to storytelling is marked by a willingness to confront uncomfortable truths, making for a compelling and insightful conversation. Sheila shares a wealth of wisdom for us all. About Sheila Nevins Sheila Nevins is an American television producer and former head of MTV Documentary Films division of MTV Entertainment Studios. Previously, Nevins was the President of HBO Documentary Films. She has produced over 1,000 documentary films for HBO and is one of the most influential people in documentary filmmaking. She has worked on productions that have been recognized with 35 News and Documentary Emmy Awards, 42 Peabody Awards, and 26 Academy Awards. Nevins has won 31 individual Primetime Emmy Awards, more than any other person. The film, I Have Tourette's but Tourette's Doen't Have Me, won an Emmy. Sheila's IMDB page From This Episode Tourette Association of America Watch I Have Tourette's but Tourette's Doesn't Have Me You Don't Look Your Age...and Other Fairy Tales (I recommend the audiobook !) National Institute of Mental Health Five Things You May Not Know About Tourette Syndrome Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to YouTube channel Follow and send a message on Facebook Follow and send a message on LinkedIn Follow on <a href="https://www.instagram.com/carole_blueweiss/" target="_b
S3 E12 · Sun, September 01, 2024
Finding Voice Through a Camera
Episode Summary In this episode, I talk with Jay Silverman, an award-winning filmmaker known for his emotionally resonant work. Jay discusses his journey into feature filmmaking, which began with "Girl on the Edge, " a deeply personal film inspired by his daughter's recovery through equine therapy. His latest film, "Camera," is another heartfelt project influenced by his experiences as a father of a daughter with impaired speech. Jay shares how his work has become a vehicle for expressing the lessons and wisdom he's gained from these personal experiences, driven by a passion to touch others through his storytelling. About Jay Silverman For over 40 years, Jay Silverman has excelled as a leading Director, Producer, and Photographer specializing in award-winning films, television, digital, and print campaigns. Jay’s narrative films have been awarded numerous Best Feature and Audience Awards at festivals across the country. His current dramatic feature " Camera" , stars Golden Globe, Emmy, and Grammy Award Winner Beau Bridges, Jessica Parker Kennedy, Scotty Tovar, Bruce Davison, and Miguel Gabriel. It will be released on Amazon and iTunes on July 23rd, 2024. His first was the multi-award-winning dramatic feature “Girl on the Edge” , starring Peter Coyote, Taylor Spreitler, Mackenzie Phillips, Elizabeth Peňa, Gil Bellows, Rex Lee, Amy Davidson, and Amy Price Francis that premiered on Showtime. His second is the charming romantic comedy “Off the Menu” starring Dania Ramirez, Tony Award Winner Santino Fontana, Makenzie Moss, and Maria Conchita Alonso, which premiered on HBO & Amazon. His third is the true story drama “Saving Paradise” starring William Moseley, Johnna Braddy, Mary Pat Gleason, Bill Cobbs, Paul Dooley, and James Eckhouse currently on Tubi and Amazon. Jay Silverman Productions: Jay Silverman Production’s mission is to use the power of storytelling to inspire and entertain with a message that is uplifting for society. As an independently owned and operated entertainment production company that develops and produces independent films and television shows, we believe we have an important responsibility to use storytelling to make the world a better place. Watch Camera: https://linktr.ee/camerathemovie From This Episode Watch Camera: https://linktr.ee/camerathemovie I Used to Be Famous Dave Holden <a href="https://www.imdb.com/title/tt0095
S3 E11 · Sun, August 11, 2024
Idle Hands Are the Devil's Playground: Drugs, Overdose, and Recovery
Episode Summary Noah, my ATV guide in Alaska, joins me on this episode of Wisdom Shared. Last season, we heard from Noah's mom, Melissa, who talked about her sobriety journey. In this discussion, Noah courageously shares his difficult journey with pills. He nearly died. He offers advice, hope, and solidarity to others facing similar struggles. His powerful narrative underscores the transformative power of sharing personal experiences in the hopes of helping others. Resources National Harm Reduction Coalition https://www.cdc.gov/opioids/basics/fentanyl.html: https://www.cdc.gov/drugoverdose/prevention/index.html Fentanyl Test Strips Find Narcan Near You If you or someone you know is struggling with substance use disorder, SAMHSA's (Substance Abuse and Mental Health Services Administration) National Helpline, 1-800-662-HELP (4357) , (also known as the Treatment Referral Routing Service) or TTY: 1-800-487-4889 is a confidential, free, 24-hour-a-day, 365-day-a-year, information service, in English and Spanish, for individuals and family members facing mental and/or substance use disorders. This service provides referrals to local treatment facilities, support groups, and community-based organizations. Callers can also order free publications and other information. You can also visit https://www.samhsa.gov . Related Episodes of Wisdom Shared Addiction to Sobriety: A Mother's Journey: Noah's mom shares her own addiction story Anonymous Sister Overdose Awareness: A Sister's Tribute Retired FBI Agent Reflects On Opioid Crisis Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to YouTube channel Follow and send a message on Facebook Follow and send a mess
S3 E10 · Sun, June 16, 2024
Bible Mistranslations and LGBTQ Marginalization: A Pastor's Daughter Speaks Out
Episode Summary Sharon "Rocky" Roggio is my special guest - the producer and director of the award-winning documentary "1946: The Mistranslation that Shifted Culture." This film explores the profound impact of a mistaken biblical translation of the word "homosexual" and its consequences on culture, religion, and the LGBTQ community. Rocky shares her personal journey as a Christian lesbian, discussing her efforts to seek acceptance and understanding from her father, a church pastor. Through these conversations, listeners gain insight into Rocky's experiences and the broader implications of this pivotal mistranslation. About Sharon "Rocky" Roggio 1946’s director, Sharon “Rocky” Roggio is no stranger to the implications of a life completely affected by the predominant modern interpretations of the Bible. Growing up lesbian in a Christian household, with a pastor for a father, has prepared her for this expansive undertaking. Rocky’s experience, of anti-gay biblical teachings, has been incredibly traumatic. She is a strong voice, among the growing chorus of LGBTQIA+ Christians who want to cure the world of this damaging narrative. Once Roggio learned of Kathy and Ed’s work, she was compelled to tell this story. This film is part of her attempts to reconcile a relationship with her family and begin to heal. Sharon “Rocky” Roggio is an multi award-winning film producer and director living in Los Angeles, CA. She has been a member of three IATSE unions nationwide and has a Bachelor’s degree in Communications with a focus in Radio, Television and Film Her background includes large budget physical production on award winning shows and films such as House of Cards , Parks and Recreation, With Bob and David , Whip It and Red Dawn . In 2016, Roggio associate produced and production designed GOOK , a feature film that premiered at Sundance in 2017 and Won the Audience Award in the Next Category. In 2018 when she heard about the 1946 mistranslation in the Bible, Roggio immediately quit all her other endeavors and has focused all her time, money, and resources on producing and creating this documentary. 1946 is Roggio’s directorial debut. About 1946: The Mistranslation that Shifted Culture 1946: The Mistranslation That Shifted Culture is a feature documentary that follows the story of tireless researchers who trace the origins of the anti-gay movement among Christians to a grave mistranslation of the Bible in 1946. It chronicles the discovery of never-before-seen archives at Yale University which unveil astonishing new revelations, and casts significant doubt on any biblical basis for LGBTQIA+ prejudice. Featuring commentary from prominent scholars as well as opposing pastors, including the personal stories of the film’s creators, 1946 is at once challenging, enligh
S3 E9 · Wed, April 03, 2024
Left Alone Rhapsody: Behind the Lens With Filmmaker Stewart Schulman
Episode Summary In this conversation with filmmaker and self-described Renaissance Man Stewart Schulman, we discuss his multifaceted career and his collaborations with John Bayless, highlighting projects like One Hand One Heart and the award-winning feature documentary Left Alone Rhapsody: The Musical Memoir of Pianist John Bayless. Schulman shares Bayless' life from childhood illness and genius piano playing at age four to Julliard as Leonard Bernstein's protege; from his Baptist upbringing to conversion to Judaism; and from playing the piano around the world as a Steinway then Yamaha artist with two hands to his re-invented life post-stroke re-learning to play the piano with his non-dominant left hand. Stewart's stories about his life and the filmmaking process are delightfully accented by John's music and one-man show, One Hand One Heart. I hope this episode (and John Bayless episode!) inspires you to see the fabulous film, Left Alone Rhapsody . About Stewart Schulman I love stories. Watching them. Telling them. They’re journeys that open our minds—our hearts—and show us new ways of thinking. I aim for my work to be entertaining and socially relevant—challenging perceptions and inspiring ‘change’. It’s how we grow. People I work with have called me a “Renaissance Man”—because I’ve explored many different creative mediums to broaden my skills as a writer, director and producer. They also tell me I bring an even-keeled temperament to the table, keep my work environments professional and enjoyable, and get the job done right. Contact me with questions. I look forward to working with you in the future. https://www.stewartschulman.com/ Act Two MediaWorks From This Episode Left Alone Rhapsody: The Musical Memoir of Pianist John Bayless Watch the trailer for Left Alone Rhapsody . Watch at Reel Abilities Film Festival in New York City on April 4th, with a live performance by John Bayless on April 8th Free Tickets Here Watch at the Sarasota Film Festival on April 10th Tickets Here Watch at the Jewish Film Festival of Pittsburgh on May 2nd, with a live performance by John Bayless Tickets Here Watch the Long
S3 E8 · Mon, March 25, 2024
Keys to Resilience: John Bayless
Episode Summary My special guest for this episode is pianist John Bayless, whose story is featured in the incredible documentary Left Alone Rhapsody: The Musical Memoir of Pianist John Bayless . In our conversation, John reflects on life before and after his stroke. Post-stroke, John's resilience shines through as he embarks on a remarkable path of self-recovery and discovery. Teaching himself to play with just his left hand, he defied the odds and embraced a new chapter. John's story and music make this episode a must-listen, just as the documentary is a must-watch. About John Bayless John Bayless is an internationally renowned concert pianist, composer, improviser, and prolific recording artist. A protégé of Leonard Bernstein and a Yamaha artist, John is a crossover artist known for how he blends classical training and piano technique with popular music in imaginative improvisations. Despite a debilitating stroke halting his illustrious 30-year career, John refused to surrender. Instead, he embarked on a second act, teaching himself to play with just his left hand. This story is brilliantly shared in Stewart Schulman's documentary Left Alone Rhapsody: The Musical Memoir of Pianist John Bayless . From This Episode Left Alone Rhapsody: The Musical Memoir of Pianist John Bayless Watch the trailer for Left Alone Rhapsody . Watch at Reel Abilities Film Festival in New York City on April 4th, with a live performance by John Bayless on April 8th Free Tickets Here Watch at the Sarasota Film Festival on April 10th Tickets Here Watch at the Jewish Film Festival of Pittsburgh on May 2nd, with a live performance by John Bayless Tickets Here Watch the Long Island Premiere on May 9th at the Jeanne Rimsky Theater , with a live performance by John Bayless The John Bayless Fund for Brain Research Yamaha's Disklavier Music featured in the episode: Circle of Life, from the album "Circle of Life: The Music of Elton John in the Style of Bach" Goodbye Yellow Brick Road, from the album "Circle of Life: The Music of Elton John in the Style of Bach" Find and Follow Carole and Wisdom Shared: <a hr
S3 E7 · Sun, March 03, 2024
One More Day: A Father's Gratitude
Episode Summary In this poignant episode, Jacob Moench shares the challenges and joys of parenting his son Samuel, who has epilepsy and autism. The episode explores how Jacob and his wife support each other and prioritize time for their other children. Jacob also talks about his company, which offers genetic testing for preventative illness, and we discuss the ethical considerations surrounding the use of DNA analysis for family planning. Despite the challenges, Jacob reflects on the profound impact Samuel has had on their lives, considering him an enormous blessing. This episode offers a powerful exploration of the unique challenges and love that characterize Jacob's journey as a parent of a child with special needs. About Jacob Moench Jacob Moench is an entrepreneur in the medical industry devoted to preventative genetic testing. He is a devoted husband to his wife of 12 years. He and his wife have four beautiful children, including their oldest, Samuel, who has Autism and Epilepsy. Jacob enjoys playing with his children, basketball, hiking, piano, cooking, and creative writing. Jacob's blog: https://fathertospecialneeds.blogspot.com/ Jacob's business: https://physiogenomic.com/ Contact Jacob From This Episode Finding Cooper's Voice Forever Boy: A Mother's Memoir of Autism and Finding Joy Mark Rober's Video about his autistic son Steele's Army - Facebook page of an epilepsy family that Jacob recommends Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to YouTube channel Follow and send a message on Facebook Follow and send a message on LinkedIn Follow on Instagram Follow on TikTok Follow on Threads The Wisdom Shared Team Audio Engineering by Steve Heatherington of Good Podcasting Works</li
S3 E6 · Sun, January 14, 2024
A Taxi With Dyslexia?
Episode Summary In this episode, Lynn Greenberg and her son Jonathan, co-authors of Robby the Dyslexic Taxi and the Airport Adventur e, share insights into Jon's journey with dyslexia. Emphasizing the transformative impact of education post-diagnosis, they discuss the power of creativity and the hidden gifts of neurodiversity. Jon, who views dyslexia as a superpower, aims, along with his mother, to inspire and empower neurodiverse children through their storytelling. This episode is a valuable resource for parents and teachers, offering insights and guidance for a more inclusive and understanding approach. For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video on YouTube: https://youtu.be/qYBVQJqdfo8 From This Episode Defining terms: dyslexia, dyscalculia, dysgraphia neurodiversity The Windward School The Orton Gillingham Approach About Lynn and Jonathan Lynn Greenberg is the happiest wife, mom, and grandma. A very retired attorney who loves to cook, exercise, and read, she has seen how positivity with feelings and differences can allow children to grow into happy, productive adults. During COVID-19, when many families were living together with an abundance of unscheduled free time, Lynn and her son Jonathan, who has dyslexia, began to work on the concepts and ideas for Robby. As ideas developed, they became increasingly invested in the character, his story, and the impact this endeavor could have on others. Born with dyslexia, Jonathan Greenberg could not read and write like many other children his age. So, instead of giving in to frustration, Jonathan used his struggle as a catalyst for creativity, expressing his ideas through art. Having overcome his learning difficulty, Jonathan has fallen in love with reading. Robby the Dyslexic Taxi And The Airport Adventure exemplify Jonathan’s passion for writing and illustration. Together with Lynn, his mother, and his writing partner, they are already thinking of other stories featuring neurodiverse characters that complement this book. Facebook: Creative Cab Co. Instagram: @creativecabcompany Website: robbythetaxi.com Buy the Book:</h
S3 E5 · Sun, December 03, 2023
The Covid That Wasn't: Surviving Toxic Shock Syndrome
Episode Summary Join me as I welcome back Amy and her daughter, Lizzie, for an insightful discussion. In this episode, we delve into Lizzie's harrowing encounter with toxic shock syndrome (TSS), exploring the severe implications and her journey to recovery. Amy shares the critical moments that led to her life-saving discovery of Lizzie's condition and her quick response. We also discuss Lizzie's candid reflections on managing her menstrual health post-TSS, the challenges she faced during her recovery, and the significant changes in her life post-illness, including the recommendation to avoid tampon use. This episode serves as an eye-opener on the crucial aspects of TSS and menstrual health awareness. For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video on YouTube: https://youtu.be/F_rYxdV3Qwc Resources WHAT YOU NEED TO KNOW ABOUT TOXIC SHOCK SYNDROME Removing the shame and stigma from menstruation 5 Things You Need to Know About Common Tampon Ingredients THE TAMPON: A HISTORY Sisters nearly die within days of each other after using 'super plus' tampons 5 Tampon Myths You Should NOT Believe https://www.twitch.tv/mamadoctorjones Days for Girls Days for Girls Days for Girls Holiday Gift Guide Days for Girls NYC Chapter Instagram Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to YouTube channel Follow and send a message on Facebook Follow and send a message on LinkedIn Follow on Instagram Follow
S3 E4 · Sun, November 12, 2023
The Dye-lemma: Autism, Behavior, and Food
Episode Summary Join us in a touching conversation with Amy and her daughter Lizzie as they share their experiences with 18-year-old Mathew, who was diagnosed with autism. Amy discusses the challenges of raising Mathew, including how eliminating certain food dyes helped reduce his aggressive behavior. Lizzie shares insights on being an older sister to a sibling with autism, highlighting the unique bond they share. This episode offers a candid look into a family's journey with autism, filled with challenges, love, and resilience. For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/NLxFbGl-0vY Resources Dye-Free Kids Facebook Group Hidden Talents ABA Marcus.org Food Color and Autism: A Meta-Analysis Autism Spectrum Disorder: What Every Parent Needs to Know book The Impact of Artificial Food Dyes on Autism & ADHD Contact Amy: atgnichols@gmail.com Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to my YouTube channel: https://www.youtube.com/@WisdomSharedCaroleBlueweiss Follow me and send me a message on Facebook: https://www.facebook.com/caroleblueweiss Follow me and send me a message on LinkedIn: https://www.linkedin.com/in/carole-blueweiss-pt-dpt-23970279/ Follow me on Instagram: https://www.instagram.com/carole_blueweiss/ The Wisdom Shared Team Audio Engineering by Steve Heatherington of Good Podcasting Works Production Assistant and Marketing Coordinator: Kayla Nelson Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to YouTube channel Follow and send a message on Facebook Follow and send a message on <a href="https://www.linkedin
Bonus · Sun, October 29, 2023
Tough Love: A Blind Man Tells His Story (Replay)
EPISODE SUMMARY This is a replay of a previously released episode, for Blindness Awareness Month. In this episode, we meet Josh Burch, a 48-year-old man who was born with Optic Nerve Hypoplasia. Josh talks about the challenges of growing up blind and shares how he navigates a world built for sighted people with the help of technology and his guide dog, Lou. We also hear more from Josh's stepmother, Julie Burch, and learn how they inspired and learned from each other, and how their relationship has changed over time. Some learning gems from this episode: Don't pet a guide dog, (he or she needs to focus on guiding). Once out of harness, you can pet the dog; iPhones have an option called "VoiceOver" which anyone can use; If you meet a blind person, don't assume they need help, ask first; Do not spoon-feed or coddle people who are blind, they are like sighted people and just need more assistance; Support groups are great like Lighthouses for the Blind; Encourage independence and build confidence; Good manners, awareness of posture and exercise matters; Tough love sometimes requires patience but it beats sympathy. For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://www.youtube.com/watch?v=SIy4DpLWE94 RESOURCES: Guiding Eyes for the Blind Rehabilitation Center for the Blind and Visually Impaired in Daytona, Florida JAWS, Job Access With Speech screen reader tool Lighthouses for the Blind - local chapters can be found across the country iPhone accessibility features Optic Nerve Hypoplasia 8 Everyday Items Originally Invented for People With Disabilities PEOPLE MENTIONED: Anne Sullivan FIND AND FOLLOW JOSH: Josh Burch: jburch73@skyrapture.com FIND AND FOLLOW JULIE: <li
Bonus · Sun, October 15, 2023
Blind from Birth: A Stepmother Shares (Replay)
EPISODE SUMMARY This is a replay of a previously released episode, for Blindness Awareness Month. Julie Burch is an accomplished author (pen name: Juliet Brilee) and stepmother to Josh, who was born blind. Now 48 years old, he lives independently with his seeing-eye dog, Lou. In this episode, Julie shares what it was like to raise a blind child. She introduces us to how she helped Josh spatially map his environment, and talks about how the brain's map differs for people who have vision versus people with no vision. Julie is a mindfulness coach, and she emphasizes the importance of patience, embracing "failure," using tough love to support independence, and enhancing the senses through mindful practice. For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://www.youtube.com/watch?v=8PNWizDEn30 In the next episode, Dr. Blueweiss interviews Josh, who shares his perspective on life in a world built by sighted people. FIND AND FOLLOW JULIE Julie's Mindfulness Art Facebook Page https://www.facebook.com/julieburch4art Julie's Author Facebook page https://www.facebook.com/Jbrileeauthor Julie's Author Website https://julietbrilee.com/ Subscribe to Julie's mailing list for information about upcoming books, nature, recipes, and life with Josh. Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to YouTube channel Follow and send a message on Facebook Follow and send a message on LinkedIn Follow on Instagram Follow on TikTok Follow on Threads The Wisdom Shared Team Audio Engineering by Steve Heatherington of Good Podcasting Works Co-Producer and Marketing Coordinator: Kayla Nelson Production Assistant: Becki Leigh
S3 E3 · Sun, September 10, 2023
FBI Stories From Retired Agent
Episode Summary In part 2 of my conversation with retired FBI Special Agent Aaron Weeter, we learn more about life as an FBI agent. Aaron explains how he got started, what it was like to work on high-profile cases like 9/11, the DC Sniper, and January 6th, and how he ultimately specialized in drug-related crimes for most of his career. It was fascinating to learn about how Aaron and his colleagues used informants and undercover officers to take down doctors in the opioid epidemic. Be sure to listen to the previous episode with Aaron to learn how the opioid epidemic of the 90s spread to become the fentanyl epidemic we have today: Retired FBI Agent Reflects On Opioid Crisis For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: h ttps://youtu.be/sDVbaz9FHbM Related Episodes Retired FBI Agent Reflects On Opioid Crisis Overdose Awareness: A Sister's Tribute Addiction to Sobriety: A Mother's Journey Anonymous Sister Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to my YouTube channel: https://www.youtube.com/@WisdomSharedCaroleBlueweiss Follow me and send me a message on Facebook: https://www.facebook.com/caroleblueweiss Follow me and send me a message on LinkedIn: https://www.linkedin.com/in/caroleblueweiss/ Follow me on Instagram: https://www.instagram.com/carole_blueweiss/ Follow me on TikTok: https://www.tiktok.com/@wisdom_shared The Wisdom Shared Team Audio Engineering by Steve Heatherington of Good Podcasting Works Production Assistant and Marketing Coordinator: Kayla Nelson Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to YouTube channel Follow and send a message on Fa
Bonus · Fri, September 01, 2023
Overdose Awareness: A Sister's Tribute
Episode Summary Since 1999, more than one million people have died from a drug overdose in the United States. On International Overdose Awareness Day, we reflect on these senseless preventable deaths. Today, we hear from previous Wisdom Shared guest Anne Pratt on the loss of her brother Daniel from an accidental overdose. May this powerful personal story help spread awareness and compassion for all those affected by the devastating impact of today's out of control epidemic. Resources How to use Narcan training video: https://www.anonymoussister.com/resources Find Naloxone near you Fentanyl Test Strips If you or someone you know is struggling with substance use disorder, SAMHSA's (Substance Abuse and Mental Health Services Administration) National Helpline, 1-800-662-HELP (4357) , (also known as the Treatment Referral Routing Service) or TTY: 1-800-487-4889 is a confidential, free, 24-hour-a-day, 365-day-a-year, information service, in English and Spanish, for individuals and family members facing mental and/or substance use disorders. This service provides referrals to local treatment facilities, support groups, and community-based organizations. Callers can also order free publications and other information. You can also visit https://www.samhsa.gov . Related Episodes Addiction to Sobriety: A Mother's Journey Anonymous Sister Retired FBI Agent Reflects On Opioid Crisis Anne's previous episode: A Mother Shares Her Journey of the Joys and Challenges of Raising a Child with Cerebral Palsy The Wisdom Shared Team Audio Engineering by Steve Heatherington of Good Podcasting Works Social Media and Marketing Coordinator: Kayla Nelson Production Intern: Cassidy Rozencwaig Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to my YouTube channel: https://www.youtube.com/@WisdomSharedCaroleBlueweiss Follow me and send me a message on Facebook: https
S3 E2 · Sun, August 06, 2023
Retired FBI Agent Reflects On Opioid Crisis
Episode Summary Our last episode explored addiction from the perspective of loved ones. In this episode, we are looking at the opioid crisis from the point of view of a retired FBI agent, Aaron Weeter, who spent 25 years specializing in drug-related crimes. From his frontline perspective, we learn how the opioid epidemic of the 90s spread to become the fentanyl epidemic we have today. For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/oXq6XJ_z-HI About Aaron Weeter Beginning in 1998, Aaron served for over 23 years as a Special Agent in the Federal Bureau of Investigation's Washington, D.C. Field Office. He served for twenty years as a case agent and three years as a supervisor investigating matters primarily involving white-collar/financial crimes in the areas of healthcare fraud and prescription drug diversion and distribution. During this time, Aaron also worked on a variety of national/office-wide cases including the 9-11, D.C. Sniper and January 6th investigations among others. Aaron is a licensed Certified Public Accountant (CPA) and a Certified Fraud Examiner. He retired from the FBI in late 2021 and recently started a fraud consulting business. Much of Aaron's FBI investigative work focused on the illegal distribution of pharmaceutical narcotics and other controlled substances by physicians, pharmacists and street-level dealers. He opened his first "pill case" in early 1999 in the early stages of what would become the pill epidemic and through dozens of cases thereafter, had a window into the evolution of the pill epidemic and its influence on the current fentanyl epidemic gripping the U.S. More to Watch and Read Chasing the Dragon: The Life of an Opiate Addict - a documentary made by the FBI & DEA Dr . Feelgood : Dealer or Healer? - a documentary about Dr. William Hurwitz, a Virginia physician who served nearly five years in prison for drug trafficking Anonymous Sister - a documentary where director Jamie Boyle explores her family's collision with the opioid epidemic All the Beauty and the Bloodshed - a documentary about artist and activist Nan Goldin and her personal fight to hold the Sackler family accountable for the opioid overdose crisis Demon Copperhead
S3 E1 · Sun, May 21, 2023
Anonymous Sister
Episode Summary In this episode, I'm joined by two special guests, harm reduction activist Julie Stampler and award-winning documentary filmmaker Jamie Boyle. We discuss the opioid epidemic through the frame of the incredible documentary Anonymous Sister , directed by Jamie Boyle, produced by Marilyn Ness, and executive produced by Julie Stampler. This is the story of one American family, but what happened to them could happen to any family. We learn about Julie's brother, Jonathan, who died from a heroin overdose, and how his death led Julie into her life of activism and harm reduction work. We see two different paths to managing addiction and substance abuse disorder. This is a story told by two women who watched their siblings suffer. This show is dedicated to all the siblings out there who are anonymous witnesses. For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/oD0vVqw-w6w About Anonymous Sister When a young woman turns to the camera for refuge, she ends up with a firsthand account of what will become the deadliest man-made epidemic in United States history. From the producers of Dick Johnson Is Dead and Summer of Soul , Anonymous Sister is two-time Emmy Award winner Jamie Boyle's chronicle of her family's collision with the opioid epidemic. Anonymous Sister will be playing at IFC Center in New York June 2nd - 8th and Laemmle Theater in Los Angeles June 16th - 22nd, with more cities to follow. Select screenings will be accompanied by special events and panels. For details and info about upcoming events: anonymoussister.com https://www.facebook.com/AnonymousSisterFilm https://www.instagram.com/anonymoussisterfilm/ https://twitter.com/AnonSisterFilm About Jamie Boyle Jamie Boyle is a two-time Emmy Award winning documentary filmmaker. Her work has played at Sundance, Tribeca, and SXSW. In 2019, she was part of the inaugural Sundance Talent Forum & Catalyst Lab and on DOC NYC’s 40 Under 40 list. She is the writer and editor of BREAKING THE NEWS, premiering Tribeca Film Festival in June 2023. She is the director and editor of ANONYMOUS SISTER, a personal feature documentary coming to theaters in summer 2023 and produced by Big Mouth Productions (DICK JOHNSON IS DEAD, CAMERAPERSON) and Vulcan Productions (SUMMER OF SOUL, THE REASON I JUMP). She was the editor,
S2 E14 · Sun, March 26, 2023
Addiction to Sobriety: A Mother's Journey
Episode Summary Melissa Conrey shares her story of living with drug and alcohol addiction and now, sobriety. A single mom of two, she worries about her children who have been exposed to so much. She went back to school to earn her degrees and is now a registered dietician. Melissa speaks openly about her challenges and her victories. For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/yTUuE_L-L8g From This Episode A.A. (Alcoholics Anonymous): https://www.aa.org/ Al-Anon: https://al-anon.org/ Melissa's Roller Derby Team: https://centralcoastrollerderby.squarespace.com/ Find and Follow Melissa: Instagram: @simplyme_rd email: melissadae2001@yahoo.com Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to my YouTube channel: https://www.youtube.com/@WisdomSharedCaroleBlueweiss Follow me and send me a message on Facebook: https://www.facebook.com/caroleblueweiss Follow me and send me a message on LinkedIn: https://www.linkedin.com/in/carole-blueweiss-pt-dpt-23970279/ Follow me on Instagram: https://www.instagram.com/carole_blueweiss/ The Wisdom Shared Team Audio Engineering by Steve Heatherington of Good Podcasting Works Social Media and Marketing Coordinator: Kayla Nelson Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to YouTube channel Follow and send a message on Facebook Follow and send a message on LinkedIn Follow on Instagram Follow on TikTok Follow on <a h
S2 E13 · Sun, January 29, 2023
A Little Perspective Makes a Big Difference
Episode Summary This episode features mother and daughter Bobbie and Angela Singletary. This dynamic duo shares their story, full of hardship, resilience, joy, love, and support. Bobbie, Angela, and two of Angela's kids all have achondroplasia, a form of dwarfism, as did Angela's late sister Cindy. Listen how Cindy’s life at 33 could not be saved despite the huge sacrifices made by her mom and sister. We will hear how the Medicaid system failed them and how in spite of life challenges, including discrimination, systemic inequity, and personal struggles with alcohol, these women continue to advocate for others. For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://www.youtube.com/watch?v=1qFpEPqzdD0 About Angela and Bobbie Angela's Podcast: A Little Perspective Angela's Website The book featuring Bobbie's essay: A Little Perspective: REAL Stories of Little Ladies Documentary EveryBODY Matters featuring Angela Angela's interview with NPR about the treatment for achondroplasia: https://www.bodiespodcast.com/resource-pages/not-your-average From This Episode Tulane University Special Delivery From Pregnancy to Toddlerhood Mindy Silva - Wired on Development The Americans with Disabilities Act (ADA) Dwarfism: Raising a Little Person , Wisdom Shared episode with Audrey Curwin Dwarfism: Life as a Little Person , Wisdom Shared episode with Jillian Curwin Dwarfism: A Mother-Daughter Conversation , Wisdom Shared episode with Audrey and Jillian Curwin Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss
S2 E12 · Sun, December 04, 2022
Lisa Greer: A Mother's Transparent Perspective
EPISODE SUMMARY Lisa Greer is a mother of five, a former executive and business owner, a convener of charitable events, and the author of Philanthropy Revolution . We discuss her childrens' diagnoses with cancer and adolescent-onset epilepsy and how that affected the whole family. Lisa explains how transparency fosters trust, something that applies to the worlds of charitable giving, healthcare, and parenting. There are so many impactful takeaways from this wide-ranging conversation with Lisa, as the wisdom she has gained in her variety of roles interconnect in sometimes surprising ways. For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/KE1KrICHEPM ABOUT LISA GREER Lisa's website: https://www.lisagreer.com/ Lisa's book: Philanthropy Revolution: How to Inspire Donors, Build Relationships, and Make a Difference Lisa's blog newsletter: https://philanthropy451.substack.com/ FROM THIS EPISODE myFace: https://www.myface.org/ Epilepsy Foundation: https://www.epilepsy.com/ Crohn's & Colitis Foundation: https://www.crohnscolitisfoundation.org/ The Feldenkrais Method Stacy Barrows is a Doctor of Physical Therapy, Certified Feldenkrais Practitioner, PMA-National Pilates Certified Teacher, and creator of the Smartroller. Visit https://www.smartroller.net/ and https://smartsomaticsolutions.com/ Wonder by R.J. Palacio Adolescent Medicine is now a subspecialty but as Lisa has experienced with her kids, it's not available everywhere. Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Follow me and send me a message on Facebook: https://www.facebook.com/caroleblueweiss Follow m
S2 E11 · Sun, October 09, 2022
Special Ed Teacher & Foster Parent Patty Speaks About Adoption
Episode Summary In this episode, we meet Patty Braendel, a special education teacher who is an adoptive mom, a birth mom, and also a foster mom. We hear about her journey to parenthood with all its ups and downs and learn how her experiences as a parent have helped her work in special education. For the visually-minded who prefer to listen and read, watch the transcript video here: https://youtu.be/6gINmxyiQ5o Resources Foster the Family Florida Department of Children and Families Empowered to Connect Find and Follow Patty Email Patty: pbraendel@gmail.com Find and Follow Carole and Wisdom Shared https://www.caroleblueweiss.com/ Follow me and send me a message on Facebook: https://www.facebook.com/caroleblueweiss Follow me and send me a message on LinkedIn: https://www.linkedin.com/in/carole-blueweiss-pt-dpt-23970279/ Follow me on Instagram: https://www.instagram.com/carole_blueweiss/ Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to YouTube channel Follow and send a message on Facebook Follow and send a message on LinkedIn Follow on Instagram Follow on TikTok Follow on Threads The Wisdom Shared Team Audio Engineering by Steve Heatherington of Good Podcasting Works Co-Producer and Marketing Coordinator: Kayla Nelson Production Assistant: Becki Leigh
S2 E10 · Sun, September 11, 2022
Kathryn Paylor-Bent: Disability Meets Fashion
EPISODE SUMMARY Kathryn Paylor-Bent has a lot of wisdom to share and we cover a lot of ground in this conversation. We talk about her experiences as a disabled woman, wheelchair user, and the CEO of two successful businesses. She uses her disability as inspiration for her successful career as an adaptive fashion designer and as a consultant to other organizations. She shares her experiences with ableism, including medical and digital ableism like shadow banning on social media and examples from her personal life. In light of some of these negative experiences, she also shares solutions as an advocate and suggests how we can better understand the disability community. Another important part of Kathryn's story is being a mother to Tom, her son with autism and mental health challenges. She shares her vision for Tom's future as well as the future of other young people with disabilities through her business Seated Sewing. For the visually-minded who prefer to listen and read, watch the transcript video here: https://youtu.be/rpJslXjawTk FROM THIS EPISODE + RESOURCES Kathryn describes ableism by saying, "Ableism is where people who are without disability assume they know what is right for us." She describes several examples, including digital ableism and medical ableism. Learn more about ableism here . Tommy Hilfiger Adaptive Dogs For Good Functional Neurological Disorder (FND) North East Autism Society : the charity behind the school Tom attends National Autistic Society Open Style Lab Pointing Out Meaningful Representation for Children With Disabilities FIND AND FOLLOW KATHRYN Seated Sewing Consult Seated Kathryn's LinkedIn Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Follow me and send me a message on Facebook: <a href="https://www.facebook.com/carol
S2 E9 · Sun, August 07, 2022
Children's Anxiety With Hospital Procedures: A Father's Digital Solution
Episode Summary: In this episode, we meet Dom Raban, a designer, software developer, and father of Issy. Issy underwent cancer treatment at age 13. While Issy is now a young adult and cancer-free, the lack of information given to Issy during her treatments prompted her father to create a child-centered app called Xploro. This amazing app was designed to improve the health literacy of children, to decrease procedural anxiety, and to improve the hospital experience for all children and their families. For the visually-minded who prefer to listen and read, watch the transcript video here: https://youtu.be/5evWmZZ4BS8 From This Episode: About Ewing Sarcoma Study showing Xploro reduces anxiety about hospital procedures: https://www.healthtechdigital.com/new-study-shows-xploro-app-reduces-procedural-anxiety-in-children/ Find and Follow Dom: Dom's LinkedIn profile: https://linkedin.com/in/domraban Xploro: https://xploro.health/ Email Dom: dom@xploro.health Dom's Twitter: @DomRaban Dom's Company's Twitter: @CorporationPop Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Follow me and send me a message on Facebook: https://www.facebook.com/caroleblueweiss Follow me and send me a message on LinkedIn: https://www.linkedin.com/in/carole-blueweiss-pt-dpt-23970279/ Follow me on Instagram: https://www.instagram.com/carole_blueweiss/ Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to YouTube channel Follow and send a message on Facebook Follow and send a message on LinkedIn Follow on <a href="h
S2 E8 · Sun, July 10, 2022
A boy and his mom: passions, dreams and spina bifida
Eleven-year-old Easton and his mother Jennifer are a great son-mom team. In this episode, we will hear from both and learn about support dogs, supercars, playgrounds, pregnancy, birth, and spina bifida. For the visually-minded who prefer to listen and read, watch the transcript video here: https://youtu.be/yVwx-zwqNhM FIND AND FOLLOW JENNIFER: crofootjennifer@gmail.com ABOUT SPINA BIFIDA: https://www.spinabifidaassociation.org/ https://redefiningspinabifida.org/ FROM THIS EPISODE: Learn about the inclusive playground Jennifer spearheaded with her local Rotary Club: https://www.rotaryplaygrounds.org/ About Ethan's favorite sport, Wheelchair Motocross or WCMX: https://en.wikipedia.org/wiki/WCMX_(sport) Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to YouTube channel Follow and send a message on Facebook Follow and send a message on LinkedIn Follow on Instagram Follow on TikTok Follow on Threads The Wisdom Shared Team Audio Engineering by Steve Heatherington of Good Podcasting Works Co-Producer and Marketing Coordinator: Kayla Nelson Production Assistant: Becki Leigh
S2 E7 · Sun, June 05, 2022
George Estreich: A father speaks about Down syndrome and biotechnology
George Estreich is an award-winning writer whose work includes poetry, memoir, and non-fiction. He is also a musician who plays with the band Mule On Fire. In addition to writing and music. George is an activist, storyteller, husband, and father to Ellie and Laura. George talks about raising his daughter, Laura, who was born with Down syndrome. And then he talks about biotechnology, disability, and the stories we tell ourselves. He discusses how all people are more than a single identity and not only are stereotypes untrue, but they are also incomplete. For more information about Down syndrome, see here . Find and follow George: https://georgeestreich.com/ Laura's episode video with transcript: https://youtu.be/Su9LTiwiyGQ Video with transcript of this episode: https://youtu.be/A5GHuyOK608 FROM THIS EPISODE: The Shape of the Eye by George Estreich Fables and Futures: Biotechnology, Disability, and the Stories We Tell Ourselves by George Estreich Unexpected: Parenting, Prenatal Testing, and Down Syndrome by Alison Piepmeier with George Estreich and Rachel Adams No Pity: People with Disabilities Forging a New Civil Rights Movement by Joseph P. Shapiro What Can a Body Do?: How We Meet the Built World by Sara Hendren Alison Piepmeier Alison's blog archive: http://alisonpiepmeier.blogspot.com/ Unified Sports - Special Olympics Individuals with Disabilities Education Act (IDEA) Report from the Hastings Center about the marketing of NIPT: Bias and Inaccuracy in Marketing Noninvasive Prenatal Tests College of Charleston Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to YouTube channel
S2 E6 · Sun, May 22, 2022
Laura E
Video with transcript: https://youtu.be/Su9LTiwiyGQ Laura, a young woman with Down syndrome talks about her life and goals. For more information about Down syndrome, see here . FROM THIS EPISODE: DEC - Disability Equity Center WINGS Transition Program Unified Sports - Special Olympics Oregon Health & Science University George Estreich BOOK: The Shape of the Eye by George Estreich Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to YouTube channel Follow and send a message on Facebook Follow and send a message on LinkedIn Follow on Instagram Follow on TikTok Follow on Threads The Wisdom Shared Team Audio Engineering by Steve Heatherington of Good Podcasting Works Co-Producer and Marketing Coordinator: Kayla Nelson Production Assistant: Becki Leigh
S2 E5 · Sun, April 17, 2022
Tough Love: A Blind Man tells his story
EPISODE SUMMARY In this episode, we meet Josh Burch, a 48-year-old man who was born with Optic Nerve Hypoplasia. Josh talks about the challenges of growing up blind and shares how he navigates a world built for sighted people with the help of technology and his guide dog, Lou. We also hear more from Josh's stepmother, Julie Burch, and learn how they inspired and learned from each other, and how their relationship has changed over time. Some learning gems from this episode: Don't pet a guide dog, (he or she needs to focus on guiding). Once out of harness, you can pet the dog; iPhones have an option called "VoiceOver" which anyone can use; If you meet a blind person, don't assume they need help, ask first; Do not spoon-feed or coddle people who are blind, they are like sighted people and just need more assistance; Support groups are great like Lighthouses for the Blind; Encourage independence and build confidence; Good manners, awareness of posture and exercise matters; Tough love sometimes requires patience but it beats sympathy. RESOURCES: Guiding Eyes for the Blind Rehabilitation Center for the Blind and Visually Impaired in Daytona, Florida JAWS, Job Access With Speech screen reader tool Lighthouses for the Blind - local chapters can be found across the country iPhone accessibility features Optic Nerve Hypoplasia 8 Everyday Items Originally Invented for People With Disabilities PEOPLE MENTIONED: Anne Sullivan FIND AND FOLLOW JOSH: Josh Burch: jburch73@skyrapture.com FIND AND FOLLOW JULIE: Julie's Mindfulness Art Facebook Page Julie's Author Facebook page Julie's Author Web
S2 E4 · Sun, March 13, 2022
Blind from Birth: A Stepmother Shares
EPISODE SUMMARY Julie Burch is an accomplished author (pen name: Juliet Brilee) and stepmother to Josh, who was born blind. Now 48 years old, he lives independently with his seeing-eye dog, Lou. In this episode, Julie shares what it was like to raise a blind child. She introduces us to how she helped Josh spatially map his environment, and talks about how the brain's map differs for people who have vision versus people with no vision. Julie is a mindfulness coach, and she emphasizes the importance of patience, embracing "failure," using tough love to support independence, and enhancing the senses through mindful practice. In the next episode, Dr. Blueweiss interviews Josh, who shares his perspective on life in a world built by sighted people. FIND AND FOLLOW JULIE Julie's Mindfulness Art Facebook Page https://www.facebook.com/julieburch4art Julie's Author Facebook page https://www.facebook.com/Jbrileeauthor Julie's Author Website https://julietbrilee.com/ Subscribe to Julie's mailing list for information about upcoming books, nature, recipes, and life with Josh. Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to YouTube channel Follow and send a message on Facebook Follow and send a message on LinkedIn Follow on Instagram Follow on TikTok Follow on Threads The Wisdom Shared Team Audio Engineering by Steve Heatherington of Good Podcasting Works Co-Producer and Marketing Coordinator: Kayla Nelson Production Assistant: Becki Leigh
S2 E3 · Sun, February 06, 2022
Dwarfism: A Mother-Daughter Conversation
EPISODE SUMMARY In this episode Jillian and Audrey, mother and daughter, share their perspectives about dwarfism and offer helpful advice and wisdom along the way. They speak about topics ranging from the "sport" of dwarf-tossing to some very enlightening and evolved perspectives on disability, advocacy, decision-making, overcoming challenges, and thriving in a world that does not make it easy to live without being stared at and photographed without consent. Dwarfism is relatively rare so most of us have never met a little person. In this episode, you will gain a new appreciation for the challenges, gifts, and wisdom of one little person and her mom. FROM THIS EPISODE Dwarf Tossing https://en.wikipedia.org/wiki/Dwarf-tossing Recent Dinklage/Disney Statements on Snow White and the Seven Dwarfs https://www.npr.org/2022/01/26/1075761231/peter-dinklage-disney RESOURCES Books Far from the Tree: Parents, Children and the Search for Identity by Andrew Solomon http://andrewsolomon.com/books/far-from-the-tree/ Thinking Big: The Story of a Young Dwarf , by Susan Kuklin https://www.amazon.com/Thinking-Big-Story-Young-Dwarf/dp/0688058264 The Missing Piece by Shel Silverstein – (animated) https://www.youtube.com/watch?v=4gEjCJOzqXc The Cracked Pot Children’s Story https://alltimeshortstories.com/life-the-cracked-pot/ Associations Little People of America https://www.lpaonline.org American Association of People with Disabilities https://www.aapd.com People Rebecca Cokely, Ford Foundation Program Officer, U.S. Disability Rights https://www.fordfoundation.org/about/people/rebecca-cokley/ Judy Heumann, Lifelong Advocate for the rights of disabled people https://judithheumann.com FOLLOW AND CONTACT JILLIAN Podcast: https://podcasts.apple.com/us/podcast/always-looking-up/id1567615385 Instagram: @jill_ilana , @alwayslookingup.podcast <
S2 E2 · Sun, January 23, 2022
Dwarfism: Life as a Little Person
EPISODE SUMMARY Jillian Curwin, an advocate for dwarfism and disability awareness, is the host of the podcast, “Always Looking Up." She was born with achondroplasia—a form of dwarfism. On the previous episode of Wisdom Shared, I spoke with her mother, Audrey. You can listen to that episode here: https://wisdom-shared.simplecast.com/episodes/audrey. In this episode, Jillian talks about what it’s like navigating this world that is primarily designed for average-height people when she herself is a little person. Her commentary on films and TV is eye-opening as she shares her frustrations, solutions, and creative visions. All these ideas can go a long way toward accessibility and inclusion if we as a society change our own perspectives and see life from other points of view. I learned a lot from speaking with Jillian for this episode, and from speaking with her mom Audrey in my last episode. Most of us take our average height for granted. Jillian helps expand our understanding with humor, intelligence, and most of all, first-hand experience as a little person. FROM THIS EPISODE Achondroplasia Achondroplasia is a form of short-limbed dwarfism. The word achondroplasia literally means "without cartilage formation." https://medlineplus.gov/genetics/condition/achondroplasia/ Jillian’s Disney Project (includes photos) https://cripplemedia.com/waiting-for-my-disney-princess/ Thinking Big: The Story of a Young Dwarf Children’s Book https://www.amazon.com/Thinking-Big-Story-Young-Dwarf/dp/0688058264 Little People, Big World TV Show https://go.tlc.com/show/little-people-big-world-tlc Nancy Volpe Beringer: Fashion Design for Sustainability and Adaptability https://www.nancyvolpeberinger.com Little People of America https://www.lpaonline.org American Association of People with Disabilities https://www.aapd.com Rebecca Cokely , Ford Foundation Program Officer, U.S. Disability Rights https://www.fordfoundation.org/about/people/rebecca-cokley/ Maria Town , American Association of People with Disabilities, President and CEO https://www.aapd.com/about/maria-town/ Wigs and Wishes https://www.wigsandwishes.org FOLLOW AND CONTACT JILLIAN Podcast: https://podcasts.apple.com/us/podcast/always-lo
S2 E1 · Sun, January 09, 2022
Dwarfism: Raising a Little Person
EPISODE SUMMARY Audrey Curwin is the mother of two adult children, Jillian and Benjamin. Audrey was the Assistant Prosecutor in Gloucester County, New Jersey, supervising the domestic violence and sexual assault unit until her retirement in 2006. She was married for 23 years to Michael Curwin, and together, they were the only husband and wife team of first assistant prosecutors in New Jersey. Audrey does not shy away from calling out what she considers unacceptable attitudes and common preconceptions. She delves into her experience of raising her eldest child, Jillian, who was born with achondroplasia, which is a form of dwarfism. Audrey, her late husband, Michael, and their son, Ben were all born average height. Jillian's diagnosis brought with it a lot of unknowns and fears and opened a window into the world of labels, accessibility, advocacy, alternate perspectives, and unique challenges. Michael and Audrey were always deeply committed to the idea that Jillian should not be defined by her stature, disability, or diagnosis, but by who she was as a human being Today, Jillian is a strong, witty, intelligent, fashionable, creative advocate. She is host of the podcast, “Always Looking Up.” In this episode, we will hear from Audrey how words matter, the many ways that the entertainment industry has marginalized little people, and how people diagnosed with dwarfism are often left out of the accessibility formula. FROM THIS EPISODE Osteogenesis Imperfecta Osteogenesis imperfecta (OI) is an inherited (genetic) bone disorder that is present at birth. It is also known as brittle bone disease. https://www.hopkinsmedicine.org/health/conditions-and-diseases/osteogenesis-imperfecta Skeletal Displaysia Skeletal dysplasia is the medical term for a group of about 400 conditions that affect bone development, neurological function, and cartilage growth, including its most common form, achondroplasia. https://www.hopkinsmedicine.org/health/conditions-and-diseases/skeletal-dysplasia Achondroplasia Achondroplasia is a form of short-limbed dwarfism. The word achondroplasia literally means "without cartilage formation." https://medlineplus.gov/genetics/condition/achondroplasia/ Little People of America https://www.lpaonline.org The Missing Piece – Animated Shel Silverstein: https://www.youtube.com/watch?v=4gEjCJOzqXc The Cracked Pot Children’s Story <a href="https://allti
S1 E14 · Sun, December 26, 2021
Carole's Wisdom Shared: Movement and Aging
EPISODE SUMMARY In this 14th episode of Wisdom Shared, Dr. Carole Blueweiss shares her own wisdom in an interview by Kathy Cocks for her podcast, Knowledge for Caregivers. In the episode, Carole brings her expertise as a Doctor of Physical Therapy to offer thoughts on movement, exercise, and wellness for older patients discharged from the hospital who are being cared for by family or home health aides. Carole also shares about life with her mother who has experienced challenges as she ages. As her daughter, Carole says that she has witnessed many changes, "and yet she inspires me every day." Dr. Blueweiss reframes growing older as a blessing, despite the unpredictable challenges that often arise. And she believes that there is more we can control as we age than we are led to believe. In this episode, learn why we owe it to ourselves to become more aware of the changing bodies every day and we learn from Kathy, in her amazing podcast, Knowledge for Caregivers, how encouragement and support can go a long way to helping our loved ones as they age with compassion and dignity. Kathy Cocks, Podcaster and Interviewer Kathy has been a registered nurse for over 30 years, working in intensive care, with disabled school children, dialysis, and now in the community with the geriatric population. She works with families and their loved ones to find the right solutions for their situation and maintains an active network of partners to help navigate the eldercare journey. Knowledge for Caregivers Podcast https://www.kathysconsulting.com/podcast Contact Kathy: Website: https://www.kathysconsulting.com Email: info@kathysconsulting.com School of Life Book Collection: https://www.theschooloflife.com Contact Carole Blueweiss: Website: caroleblueweiss.com Email: clevpt@gmail.com Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to YouTube channel Follow and send a message on Facebook Follow and send a message on LinkedIn Follow on Instagram Follow on TikTok Follow on Threads The Wisdom Shared Team Audio Engineering by Steve Heatherington of Good Podcasting Works Co-Producer and Marketi
S1 E13 · Sun, November 21, 2021
Anorexia: A Father's Perspective
EPISODE SUMMARY Dr. Blueweiss speaks with Nafiz Cekirge, a father in central New Jersey who speaks candidly about the impact that anorexia has had on his oldest daughter and on the family. There are a lot of unknowns to do with eating disorders and Nafiz helps us to understand the complexity of anorexia and the importance of listening to your instincts if you suspect your child is struggling. You are welcome to share the wisdom from this episode. Please be sure to credit: “Ep. 13, Anorexia: A Father's Perspective", Courtesy of Wisdom Shared Podcast with Carole Blueweiss.” Mentioned in this Episode TREATMENTS & TREATMENT PROGRAMS Family-Based Treatment A type of therapy which involves all family members in treatment of the individual with the disorder. Currently considered the gold standard approach for addressing anorexia nervosa. Views food as medicine, and places responsibility for all meal decisions, shopping, and preparation with caretaker in early phases of this modality. https://www.feast-ed.org/what-is-family-based-treatment/ FAMILY THERAPIST Amy Begel https://www.amybegel.com/ ADOLESCENT MEDICINE EATING DISORDER SPECIALIST Dr. Jennifer Northridge https://doctors.hackensackmeridianhealth.org/provider/Jennifer+L.+Northridge/1317171 TREATMENT FACILITIES MENTIONED IN THIS EPISODE Princeton Center for Eating Disorders at Penn Medicine https://www.princetonhcs.org/care-services/center-for-eating-disorders-care Hidden River, Chester NJ https://hiddenriverhealing.com LEVELS OF CARE Inpatient : patient acutely ill, and requires medical stabilization. Residential : highly structured live-in environment for medically stable patients; offers 24X7 support. Partial Hospitalization (PHP): a step-down treatment-based day program; offers recovery-based therapies and support along with opportunities to practice recovery outside of program. Intensive Outpatient (IOP): flexible treatment program; assumes patient is able to participate in school, work, and so on. Treatment team (therapist, nutritionist) providing regular support. Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to <a href="https://www.youtube.com/@WisdomShar
S1 E12 · Sat, October 30, 2021
Jewel and her Tribe
FOLLOW IVANA Facebook: @mauimovementlessons LinkedIn: https://www.linkedin.com/in/ivana-gadient-8b21a536/ CONTACT VERENA email: vera9nyc@yahoo.com RESOURCES recommended by Ivana "Wheelchairs are a HUGE conversation. It is best to create a trusted, knowledgable and openminded team that you hand pick to help you successfully seat your loved one" https://aci.health.nsw.gov.au/networks/spinal-cord-injury/spinal-seating/module-6/wheelchair-seating-a-complex-puzzle TALK TOOLS : for finding a therapist, and continuing education. https://talktools.com FEEDING MATTERS : Parent Support Network "Feeding Matters is a great organization, started by two moms. They pursued chasing the CDC for a stand alone diagnosis and code called PFD pediatric feeding disorder. They dedicated five years to this and it came to pass this year. They have a lot of free resources and supports for parents." https://www.feedingmatters.org JABBERMOUTHS: Speech, Oral-Motor, and Feeding Therapy "This is Jewel's latest SLP who is amazing! I highly recommend Jenn, she is licensed in HI and AZ and does Zoom lessons. Highly skilled, highly educated, great instinct, grew up around disability and very comfortable around our families. She can teach premature babies to latch on to both breast and bottle!" https://jabbermouths.com/ THERAPISTS AND THERAPIES in episode ARLENE WARD is the owner of Genesis Rehabilitation Ltd., a vocational rehabilitation and disability management company based in Nanaimo, BC. Their goal is to keep workers at work. She is also an Adjunct Professor at the University of Northern BC Canada. https://www.linkedin.com/in/arleneatgenesis/ JUDITH HEUMANN is an internationally recognized disability advocate who served in the Clinton and Obama Administration and was a Senior Fellow at the Ford Foundation. https://judithheumann.com KAREN ERICKSON, PH.D. is the Director of the Center for Literacy and Disability Studies, a Professor in the Division of Speech and Hearing Sciences, and the Yoder Distinguished Professor in the Department of Allied Health Sciences, School of Medicine at the University of North Carolina at Chapel Hill. <a href="https://www.med.u
Bonus · Sun, October 17, 2021
Anniversary Reflection Wisdom Shared
NEUROMOVEMENT THERAPY: Anat Baniel and NeuroMovement® (ABMN®) Anat Baniel, a student of Moshe Feldenkrais, developed and evolved NeuroMovement® from 30+ years of experience with thousands of clients using practical applications of brain plasticity principles. The Anat Baniel Method® approach is founded in neuroscience and the biodynamics of the human body, and utilizes movement and the 9 Essentials to create conditions for the brain to wake up and upgrade its own functioning. Read more about the Nine Essentials: https://www.anatbanielmethod.com/about/neuromovement/neuromovement-and-9-essentials THE PODCASTING WORKSHOP WITH SETH GODIN: how I learned to podcast! https://akimbo.com/thepodcastingworkshop Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to YouTube channel Follow and send a message on Facebook Follow and send a message on LinkedIn Follow on Instagram Follow on TikTok Follow on Threads The Wisdom Shared Team Audio Engineering by Steve Heatherington of Good Podcasting Works Co-Producer and Marketing Coordinator: Kayla Nelson Production Assistant: Becki Leigh
Bonus · Sat, October 16, 2021
Anniversary Reflection
THE PODCASTING WORKSHOP WITH SETH GODIN: how I learned to podcast! https://akimbo.com/thepodcastingworkshop NEUROMOVEMENT THERAPY: Anat Baniel and NeuroMovement® (ABMN®) Anat Baniel, a student of Moshe Feldenkrais, developed and evolved NeuroMovement® from 30+ years of experience with thousands of clients using practical applications of brain plasticity principles. The Anat Baniel Method® approach is founded in neuroscience and the biodynamics of the human body, and utilizes movement and the 9 Essentials to create conditions for the brain to wake up and upgrade its own functioning. Read more about the Nine Essentials: https://www.anatbanielmethod.com/about/neuromovement/neuromovement-and-9-essentials
S1 E11 · Sun, August 01, 2021
Type 1 Diabetes:Art & Science
EPISODE SUMMARY JoAnne Robb is a psychotherapist from Oakland, California, who counsels adults and parents of children with Type 1 Diabetes. She is a mother of three. Her oldest and youngest have diabetes and her middle child does not, although as you'll learn through our conversation, he is still very much impacted by the disease. In this episode, JoAnne shares first-hand knowledge and personal stories. We learn why managing Type 1 Diabetes is as much an art as a science; why children and teenagers have their own dynamics, how technology can be a double-edged sword when it comes to managing the disorder, and how support is available if you know where to look. JoAnne explains why Type 1 is a family disease and the importance of finding support and community. She speaks of the advantages and disadvantages of different insulin delivery systems, the role food plays, the intense financial implications of managing Diabetes, and much more. Select Quotes You are welcome to share the wisdom from this episode. Please be sure to credit: “_Ep. 11, JoAnne Robb, Courtesy of Wisdom Shared Podcast with Carole Blueweiss.” “When we first were diagnosed—you'll see that I'm using the word ‘we’; I think of [Type 1] as a family disease in a lot of ways, especially when kids are young. It's too much for the kids to carry by themselves.” “When I thought about what would be hard for a kid around diabetes management, I would have thought of the shots and the needles and the pokes, but really what's hard is having this constant numbers game.” “There's a lot of anxiety about being a parent of a kid with Type 1. And I feel like some of the information out there kind of heightens that anxiety. I feel like my contribution to this dialogue is to say, there's a way to do this more calmly.” "Pump supplies are really expensive, CGM is really expensive, insulin is really expensive." “How we approach [Type 1 Diabetes] emotionally truly makes a difference in our relationship to the disease…and ultimately in our children's relationship to the disease.” "And the other thing that's been completely invaluable, which I could not pitch more strongly, is diabetes camp...we went to family camp and we gained a lot of community, but also a lot of information. “Restricting food too much can have a mental health boomerang effect that you really don’t want.” "This is not just a medical condition, even though it seems like it is, It's also an emotional condition...and a lowercase t trauma." "I do think that the way that parents talk about this trauma of diabetes makes a difference in the child's relationship to the disease." “Learning Diabetes is like drinking from a fire hose.” “The Diabetes community in general is very generous about wanting to help each other because we all know exactly what we're going through.” “My biggest piece of advice is that y
S1 E10 · Sun, June 27, 2021
Labels Schmabels: A Mom’s Take On Her Daughter’s Humanity
Ariana Speyer is an experienced editor, writer, and copywriter turned Anat Baniel Method NeuroMovement® (ABMN®) practitioner. She lives in New York City with her husband Pat and their nine-year-old daughter, Calliope. In this episode, Ariana shares about life with Calliope, who has a rare genetic syndrome called Sturge Weber Syndrome, and how ABMN® has made a difference in their health and well-being. Ariana underscores that people are more multidimensional than their diagnosis, and reminds us how isolating it can be to live outside of society’s so-called norms. When you break it all down, we’re all seeking to belong and to be part of a welcoming community. Learn more about Ariana and her work at arianaspeyer.com. You are welcome to share the wisdom from this episode. Please be sure to credit: “_Ep. 10, Ariana Speyer, Courtesy of Wisdom Shared Podcast with Carole Blueweiss._” In my conversation with Ariana, we covered a lot of ground. Here are some of the highlights. Parenting a child with special needs in some ways prepared Ariana and her husband for the COVID-19 pandemic , “Because risk-benefit analysis is something we've been very used to doing since my daughter was very little, and that's something people are grappling with a lot of: Is this worth it? Does this make sense? Is the benefit worth the risk? You know, all of those questions we have to ask ourselves now all the time we were already pretty used to asking ourselves, like, is it worth it to have an MRI?” We discuss labels, and how the bureaucratic drive to quantify every special needs child is an ongoing challenge for parents . “If I were to talk about her as a human, as somebody that I love, I would say she's silly. She loves to dance. She's nine years old. She enjoys all kinds of music and hanging out with her grandparents and watching movies. If I was going to talk about her labels, I would say that she's non-ambulatory, non-verbal, and she has multiple disabilities.” Bedside manner isn’t something every doctor is trained in, but it can make all the difference . “Ideally, a doctor will come with a certain amount of positivity and kind of connectedness. That makes you feel safe and like you're working together collaboratively to figure out the next best thing.” The Anat Baniel Method, or ABM Method, provided a transformational, movement-based way of working with Calliope and a new career and community for Ariana . “From the very beginning, I just felt a visceral response to the ABM approach, which is so gentle. And so hard to describe—giving Calliope movement experiences that she wouldn't have on her own in a way that would develop her own potential.” In ABM, resting is part of learning . “Rest is so essential to how ABM operates in every movement lesson. There's so much resting and that's a time when you can kind of notice differ
S1 E9 · Sun, May 23, 2021
The Gift Of Adversity: A Father’s CFS, His Daughter’s Dravet Syndrome
RESOURCES MENTIONED IN THIS EPISODE Dravet Syndrome (aka “severe myoclonic epilepsy of infancy”) https://www.epilepsy.com/learn/types-epilepsy-syndromes/dravet-syndrome https://www.dravetfoundation.org Chronic Fatigue Recovery Program: ANS Rewire https://ansrewire.com/ Simon’s Podcast: Turning the Tables https://www.podpage.com/turning-the-tables/ Simon’s website https://www.brandwithsimon.com/ SIMON'S RECOMMENDED BOOKS A New Earth by Ekhart Tolle The Surrender Experiment by Michael A Singer EXCERPTS FROM THE INTERVIEW You are welcome to share the wisdom from this episode. Please be sure to credit: “ Ep. 9, Simon Ratcliffe, Courtesy of Wisdom Shared Podcast with Carole Blueweiss.” It isn't a straight line to recovery from Chronic Fatigue Syndrome We're in the middle of COVID right now. There are many people experiencing very different symptoms and no one has the answer. To get through a chronic illness, you have to completely reframe what the idea of recovery is. It takes a long time for your brain to recondition itself or retrain itself around positive thoughts. Every time I had a negative thought, I would reframe it in my head. It was clear that a developmental delay would mean that she would need in a special school. Lot of kids with conditions have a lot of potential, but because of the resources needed to bring that out in a child, they end up settling for good average. Education is more geared around helping with independence, which is fine, but a lot of children like Francesca will not be able to live an independent life. People with special needs, need to be categorized as important as any other diverse group. Recognize that the situation you are in, if you have a child with special needs, puts much greater pressure on you. We need to see individuals not labels. It took the chronic fatigue to enable me to completely re reboot my mental state, my life, my priorities, my thinking. Why don't we live life with rose-tinted spectacles on? Why is it a good idea to be painfully realistic about everything? Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to YouTube channel Follow and send a message on <a href=" https://www.facebook.com/caroleblueweiss" target="_bla
S1 E8 · Mon, April 26, 2021
Hidden Rituals: Living with OCD
Rosemary Bushey currently lives in New Hampshire with her husband and two daughters, Lauren 16 and Amelia 13. She is a 49-year-old runner, coach, and vegan Instagram influencer. Rosemary was born in Columbia, South America and has lived in New York for most of her life. She is currently completing a master’s degree to work as a bilingual Clinical Mental Health Counselor. She is pursuing this degree because her older daughter was diagnosed with Obsessive-Compulsive Disorder (OCD) at age 14. Rosemary has always been passionate about food, fitness, and the body/mind connection. Two years ago, she adopted a vegan lifestyle, and is avidly exploring the connection between mental health and nutrition. She shares vegan recipes and gorgeous photos of the food she has prepared on her Instagram page, @simplyveggielicious. Lauren loves to write, draw, and sing. https://www.instagram.com/simplyveggielicious/ Song credit: "idontwannabeyouanymore" by Billie Eilish, sung by Lauren Bushey RESOURCES MENTIONED IN THIS EPISODE FOUNDATIONS International OCD Foundation https://iocdf.org TREATMENT FACILITIES Bradley Hospital https://www.lifespan.org/centers-services/intensive-program-obsessive-compulsive-disorder Rogers Hospital https://rogersbh.org McLean Hospital https://www.mcleanhospital.org HOUSING FOR FAMILIES Ronald McDonald House https://www.rmhc.org APPROACHES Integrative Medicine https://www.drweil.com/health-wellness/balanced-living/meet-dr-weil/what-is-integrative-medicine/ https://www.mayoclinic.org/tests-procedures/complementary-alternative-medicine/about/pac-20393581 https://health.usnews.com/health-conditions/heart-health/integrative-medicine/overview Cognitive Behavioral Therapy https://www.apa.org/ptsd-guideline/patients-and-families/cognitive-behavioral https://www.mayoclinic.org/tests-procedures/cognitive-behavioral-therapy/about/pac-20384610 <a href="https://www.healthline.com/health/cognitiv
S1 E7 · Sat, March 06, 2021
I am Free Now
ABOUT BERIL TOKCAN After studying graphic design in Milan and visual communication in Sydney respectively, Beril Tokcan returned to her homeland Turkey in 2003 and founded her design studio in Istanbul. She came across the Anat Baniel Method® NeuroMovement (ABMNM) in 2012, while in search for a method to help her son, who was diagnosed with PVL /CP due to premature birth. She completed the ABMNM Professional Training in 2015 and consecutively all the ABMNM Mastery Programs (for Children with Special Needs, for Vitality and Anti-Aging, and for High Performers). She also completed Kids Yoga, Yoga Therapy and Jeremy Krauss Approach trainings and participates in the ABMNM Professional Trainings as an assistant. She works with children and adults at her practise in Istanbul, offering private lessons, group classes and workshops, with the mission of transforming the impossible into possibie and making positive changes in people’s lives. Beril is the author of ‘ I Am Free Now’ . www.beriltokcan.com Instagram: beriltokcan @devinim Anat Baniel Method® NeuroMovement® Practitioner www.beriltokcan.com www.devinim.ist RECOMMENDED RESOURCES (list compiled by Beril) BOOKS Awareness Through Movement , Moshe Feldenkrais Hardwiring Happiness , Rick Hanson Hold Onto Your Kids , Dr.Gordon Neufold & Dr.Gabor Maté Kids Beyond Limits , Anat Baniel Move Into Lİfe , Anat Baniel Parenting from the Inside Out , Daniel Siegel and Mary Hartzell Positive Discipline for Children with Special Needs , Jane Elsen, Steven Foster & Arlene Raphael Rising Strong, Brené Brown Soft Wired , Michael Merzenich The Brain That Changes Itself , Norman Doidge The Brain’s Way of Healing , Norman Doidge The Whole Brain Child , Daniel Siege and Tina Payne Bryson Train Your Mind, Change Your Brain , Sharon Begley Trauma-Proofing Your Kids , Peter A.Levine, Maggie Kline HEALTHCARE PRACTITONERS Dr.Paul Jordan drjordan@drpauljordan.net https://drpauljordan.godaddysites.com/ Dr.Roy Nuzzo Overlook Hospital, Summit NJ 973-306-9388 video.popc@gmail.com Dr.Joseph C. D’Amico 212-757-6440 Info@drjosephcdamico.com SPML http://www.podopediatrics.net/spml Facebook Group: SPML - Selective Percutaneous Myofascial Leng
S1 E6 · Sun, February 07, 2021
Jill Bolte Taylor: Energy Beings
You can follow Dr. Jill on Twitter @drjbt Visit Dr. Jill Bolte Taylor's website http://drjilltaylor.com Dr. Jill's Ted Talk, "My Stroke of Insight" https://www.ted.com/talks/jill_bolte_taylor_my_stroke_of_insight The Harvard Brain Bank https://hbtrc.mclean.harvard.edu Fifty Trillion Molecular Geniuses Musical Composition Cecelia Chorus of NY commissioned The Brothers Balliett for a musical composition, Fifty Trillion Molecular Geniuses, with texts drawn from Dr. Jill Bolte Taylor’s book and TED Talk My Stroke of Insight . The piece was performed at Carnegie Hall on Dr. Jill's 60th birthday. Read more: https://ceciliachorusny.org/updates-contact/brad-doug-balliett-composing-fifty-trillion-molecular-geniuses Moshe Feldenkrais and The Feldenkrais Method® The Feldenkrais Method® of somatic education was developed by Dr. Moshe Feldenkrais. It is a powerful approach to improving life that uses gentle, mindful movement to bring new awareness and possibility into every aspect. The Feldenkrais Method is based on principles of physics, biomechanics, and an empirical understanding of learning and human development.Since how you move is how you move through life, these improvements will often enhance your thinking, emotional regulation, and problem-solving capabilities. Read more: https://feldenkrais.com Anat Baniel and NeuroMovement® Anat Baniel, a student of Moshe Feldenkrais, developed and evolved NeuroMovement® from 30+ years of experience with thousands of clients using practical applications of brain plasticity principles. The Anat Baniel Method® approach is founded in neuroscience and the biodynamics of the human body, and utilizes movement and the 9 Essentials to create conditions for the brain to wake up and upgrade its own functioning. The Nine Essentials Essential 1 – Movement with Attention; Wake up to Life Essential 2 – Slow; Luxuriate in the Richness of Feeling Essential 3 – Variation; Enjoy Abundant Possibilities Essential 4 – Subtlety; Experience the Power of Gentleness Essential 5 – Enthusiasm; Turn the Small into the Great Essential 6 – Flexible Goals; Make the Impossible Possible Essential 7 – The Learning Switch; Bring in the New Essential 8 – Imagination & Dreams; Create your Life Essential 9 – Awareness; Thrive with True Knowledge Read more about the Nine Essentials: https://www.anatbanielmethod.com/about/neuromovement/neuromovement-and-9-essentials Recommended Reading: My Stroke of Insight by Dr. Jill Bolte Taylor Whole Brain Living by Dr. Jill
Sat, February 06, 2021
Jill Bolte Taylor: Energy Beings
You can follow Dr. Jill on Twitter @drjbt Visit Dr. Jill Bolte Taylor's website http://drjilltaylor.com Dr. Jill's Ted Talk, "My Stroke of Insight" https://www.ted.com/talks/jill_bolte_taylor_my_stroke_of_insight The Harvard Brain Bank https://hbtrc.mclean.harvard.edu Fifty Trillion Molecular Geniuses Musical Composition Cecelia Chorus of NY commissioned The Brothers Balliett for a musical composition, Fifty Trillion Molecular Geniuses, with texts drawn from Dr. Jill Bolte Taylor’s book and TED Talk My Stroke of Insight . The piece was performed at Carnegie Hall on Dr. Jill's 60th birthday. Read more: https://ceciliachorusny.org/updates-contact/brad-doug-balliett-composing-fifty-trillion-molecular-geniuses Moshe Feldenkrais and The Feldenkrais Method® The Feldenkrais Method® of somatic education was developed by Dr. Moshe Feldenkrais. It is a powerful approach to improving life that uses gentle, mindful movement to bring new awareness and possibility into every aspect. The Feldenkrais Method is based on principles of physics, biomechanics, and an empirical understanding of learning and human development.Since how you move is how you move through life, these improvements will often enhance your thinking, emotional regulation, and problem-solving capabilities. Read more: https://feldenkrais.com Anat Baniel and NeuroMovement® Anat Baniel, a student of Moshe Feldenkrais, developed and evolved NeuroMovement® from 30+ years of experience with thousands of clients using practical applications of brain plasticity principles. The Anat Baniel Method® approach is founded in neuroscience and the biodynamics of the human body, and utilizes movement and the 9 Essentials to create conditions for the brain to wake up and upgrade its own functioning. The Nine Essentials Essential 1 – Movement with Attention; Wake up to Life Essential 2 – Slow; Luxuriate in the Richness of Feeling Essential 3 – Variation; Enjoy Abundant Possibilities Essential 4 – Subtlety; Experience the Power of Gentleness Essential 5 – Enthusiasm; Turn the Small into the Great Essential 6 – Flexible Goals; Make the Impossible Possible Essential 7 – The Learning Switch; Bring in the New Essential 8 – Imagination & Dreams; Create your Life Essential 9 – Awareness; Thrive with True Knowledge Read more about the Nine Essentials: https://www.anatbanielmethod.com/about/neuromovement/neuromovement-and-9-essentials Recommended Reading: The Feldenkrais Method: Learning Through Movement By Staffan Elgelid, Chrish Kresge, with fo
S1 E5 · Sun, January 10, 2021
Man Up: Parenting a Child Born with a Rare Genetic Syndrome
FOR MORE INFORMATION: The 5P- Society (Cri du Chat) https://fivepminus.org/ Cri du Chat Society Facebook Page https://www.facebook.com/CriDuChatSociety National Organization for Rare Disorders https://rarediseases.org/rare-diseases/cri-du-chat-syndrome NOTABLE QUOTES FROM THIS EPISODE: You are welcome you to share the wisdom from this episode. Please be sure to credit: “ Ep. 5, Damas Manderson, Courtesy of Wisdom Shared Podcast with Carole Blueweiss. ” 22:30 “When you’re hurt, you hurt others” 30:59 “If empathy was the first point of reference for people, that would go a long way” 39:07 - “A handful of special needs parents can fall into the category of where the normal children become caregivers whether they want it or not.” 44:00: “What does it cost me? It’s only cost me money. What have I gained? A loving wholesome family, with a value that we will carry forever. My family is my legacy.” 50:00 “There’s not an instruction book for how to be an effective special needs mother and father or husband and wife.” 51: “Kindness doesn’t mean weakness. Kindness means strength.” EDITOR’S NOTE: Damas and Dina Manderson intend to start a foundation for their daughter, Kennedy Rose. These episode notes will be updated to include foundation information when it is available. (1/9/2021) Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to YouTube channel Follow and send a message on Facebook Follow and send a message on LinkedIn Follow on Instagram Follow on TikTok Follow on Threads The Wisdom Shared Team Audio Engineering by Steve Heatherington of Good Podcasting Works Co-Producer and Marketing Coordinator: Kayla Nelson Production Assistant: Becki Leigh
S1 E4 · Sun, December 13, 2020
Found in Transition: A Conversation with Mother, Pediatrician and Author Paria Hassouri
ABOUT PARIA HASSOURI Website: www.PariaHassouri.com Book: Found in Transition Facebook: www.facebook.com/paria.hassouri Instagram: @laparia Twitter: @pariahassouri LINKS FROM INTERVIEW https://themoth.org/storytellers/cybele-abbett Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to YouTube channel Follow and send a message on Facebook Follow and send a message on LinkedIn Follow on Instagram Follow on TikTok Follow on Threads The Wisdom Shared Team Audio Engineering by Steve Heatherington of Good Podcasting Works Co-Producer and Marketing Coordinator: Kayla Nelson Production Assistant: Becki Leigh
S1 E3 · Sun, November 08, 2020
A Mother Shares Her Journey Parenting a Newborn Diagnosed with a Stroke
ABOUT MARA YALE Website: www.marayale.com Facebook Page: www.facebook.com/yalemaram Instagram: @maramyale Blog: www.marazoemia.net ABOUT REGAME-VR LAB AT NORTHEASTERN UNIVERSITY Research in the Rehabilitation Games and Virtual Reality Laboratory at Northeastern University focuses on the sustainable, evidence-based integration of virtual reality (VR) and active video games into rehabilitation practice for children with neuromotor impairments such as cerebral palsy. Website: www.web.northeastern.edu/regamevrlab Facebook: www.facebook.com/regamevrlab Twitter: @regamevr Audio from ReGame-VR lab interviews produced by Benjamin Bertsch and Adam Fischer. LINKS FROM INTERVIEW I-ACQUIRE: www.nihstrokenet.org/i-acquire/family-resources I-ACQUIRE clinical trial for constraint induced movement therapy: www.clinicaltrials.gov/ct2/show/NCT03910075 Cerebral Palsy Soccer: www.cpsoccer.us Hand in Hand Parenting: www.handinhandparenting.org The Reading Promise: www.makeareadingpromise.com Dr. Karen Pape: www.karenpapemd.com Children's Hemiplegia and Stroke Association (CHASA): www.chasa.org International Alliance for Pediatric Stroke: www.iapediatricstroke.org Sheryl Field, Field Center for Integrated Development: www.thefieldcenter.org Feldenkrais: www.feldenkrais.com Somatic Experiencing: www.traumahealing.org/about-us Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to YouTube channel Follow and send a message on Facebook Follow and send a message on LinkedIn Follow on Instagram Follow on <a href=
S1 E2 · Sat, October 17, 2020
A Mother Shares Her Journey Raising Her 20-Year-Old Daughter who was Diagnosed With Autism as a Young Child.
About Claude Winn website: http://claudewinn.com Insta: @cwinnart Song Credits How Far I'll Go written by Auliʻi Cravalho © 2016 Walt Disney Records LINKS FROM THE INTERVIEW http://anatbanielmethod.com http://suzingreen.com http://yogalambertville.com http://theclass.com http://ramahdarom.com https://www.autismspeaks.org/verbal-behavior-therapy https://www.autismspeaks.org/floortime-0 Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to YouTube channel Follow and send a message on Facebook Follow and send a message on LinkedIn Follow on Instagram Follow on TikTok Follow on Threads The Wisdom Shared Team Audio Engineering by Steve Heatherington of Good Podcasting Works Co-Producer and Marketing Coordinator: Kayla Nelson Production Assistant: Becki Leigh
Trailer · Wed, September 09, 2020
Wisdom Shared: Trailer
Parents of special needs children share their stories
S1 E1 · Mon, September 07, 2020
A Mother Shares Her Journey of the Joys and Challenges of Raising a Child with Cerebral Palsy
ABOUT ANNE PRATT Website: www.indymovevolution.com Email: anne@indymovevolution.com LINKS FROM INTERVIEW Treatment Modalities Early Intervention: https://www.cdc.gov/ncbddd/actearly/parents/states.html Anat Baniel Method of Neuromovement: https://www.anatbanielmethod.com/ The Masgutova Neurosensorimotor Integration (MNRI) Method Set: https://masgutovamethod.com/ Functional Medicine: https://www.ifm.org/find-a-practitioner/ Riley CP Clinic: https://www.rileychildrens.org/departments/cerebral-palsy-program Therapies Hippotherapy: https://www.americanhippotherapyassociation.org Occupational Therapy: https://www.cerebralpalsy.org/about-cerebral-palsy/treatment/therapy/occupational-therapy Physical Therapy: https://www.cerebralpalsy.org/about-cerebral-palsy/treatment/therapy/physical-therapy Speech Therapy: https://www.cerebralpalsy.org/about-cerebral-palsy/treatment/therapy/speech-language-therapy Water Therapy: https://www.cerebralpalsy.org/about-cerebral-palsy/treatment/therapy/aqua-therapy Tools & Equipment Eye Tracking Devices: https://www.cerebralpalsy.org/inspiration/technology/eye-tracking Defining the Body The corpus callosum is the primary commissural region of the brain consisting of white matter tracts that connect the left and right cerebral hemispheres. https://www.ncbi.nlm.nih.gov/books/NBK448209/ Find and Follow Carole and Wisdom Shared: https://www.caroleblueweiss.com/ Subscribe to YouTube channel Follow and send a message on Fac
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